Dear PKS Families,

We want to let everyone know that PKS Kids is 100% committed to providing support for families impacted by Pallister Killian Syndrome while working with the medical community to raise awareness and conduct relevant research. As you would imagine, we are a small, but growing non-profit. As a result, we need to focus our efforts.

We will continue to plan, sponsor and coordinate The PKS Medical and Family Conference, in conjunction with the doctors at the Children’s Hospital of Philadelphia, every other year. These conferences will be on the even numbered years with the next one being in June 2012. We will send information about specific dates as soon as possible.

For the odd numbered years, PKS Kids tried, in the past, to coordinate “family gatherings” that are less structured and meant to take place at varying locations. We have decided, as an organization, to leave the family gatherings to all of us families! We are all better served with smaller, local gatherings that keep costs and travel time to a minimum. And most importantly, we want PKS Kids to focus on putting together the best possible conference every other year.

We will, of course, continue to provide the forums to discuss and plan these off-year gatherings via our websites at www.pkskids.com and http://pkskids.ning.com/ .

Our best to you and your families and we hope to see you all in person in June 2012!!!

Sincerely

PKS Kids