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Board of Directors
PKS Kids was started by a small group of parents in 2006. Their purpose was to promote Pallister-Killian Syndrome and raise awareness through this non-profit organization.
Mike Zane   Mike Zane, Chairperson
Michael lives is East Islip, New York with his wife Nicole, also actively involved in PKS KidsTM. They have 3 beautiful children - Jake, who was diagnosed with PKS at 6 months old and twins Kayla and Brandon. Michael has been involved in the media business for over 20 years and currently oversees a department responsible for online marketing and customer experience for Publishers Clearing House, where he is Director of Online Marketing. He graduated from the University of Maryland at College Park with a degree in business management. Jake has his own website where all are welcome at www.jakezane13.com

Christine Strahm  

Christine Strahm, Treasurer/Financial Chair

I am a mother of 4 great kids, ages 19 (diagnosed with Asperger’s/ASD),  17,  7 and 4 (Airyn with PKS). I have worked full time at a Buick auto dealership for the past 9 years.  I live in Green Bay,  WI and love it here other than the long winters.  I have learned so much about PKS since Airyn’s diagnosis and it has motivated me to do more in regards to awareness and educating Airyn’s many doctors.  I have been lucky enough to have great physicians from the UW-Madison hospitals that Dr. Pallister has referred to in his past research.


Gretchen   Gretchen Peters, Secretary & Education/Promotions Chair
Gretchen’s youngest child, Simon, was born in 2004 with Pallister-Killian Syndrome. Not having informational resources to help her deal with the diagnosis, Gretchen was determined to help others navigate through the world of PKS. To update friends and family, she created a website for her son and she's thrilled to know that it has been the first point of information for several families. Not wanting to stop there, she hopes that PKS Kids will help to make information about Pallister-Killian widely available for those who are still searching. Gretchen lives in Marshall, MI with her husband Jim and children, Alex, Emily, Maddy, Natalie, and Simon. She may be reached at gpeters@pkskids.net. You may visit Simon's website here.  Gretchen also serves as the Education & Promotions Chair.

Kim Hudson   Kim Hudson, Medical Advisory Committee
Kim lives in Pittsburgh with her husband and their 4 boys. Their oldest son Andrew was born in 2001 with PKS. She has been a nurse for 13 years and works part-time as a Field nurse supervisor for an agency that cares for children and adults with disabilities. Whenever possible, she enjoys traveling with her family and getting together with friends. Her hope for this organization is to promote awareness, facilitate research and ultimately improve the quality of life for the children touched by PKS.

Annie  

Annie Kelley, Member at Large

Annie lives in Canton, Michigan with her husband Tim and 3 children, Avery, Patrick and Jameson.  When Patrick was born in 2010 and diagnosed with PKS, they were given the PKS Kids website for guidance.  It helped her understand the importance of parent advocacy and made her determined to spread awareness of this syndrome.  Annie is currently a full time mom, but was previously an elementary school teacher.  She is also working on finishing her Masters Degree in Special Education, as well as volunteering and advocacy at the University of Michigan.  You can follow the family's journey at:  www.bubbypks.blogspot.com


  Edythe Park, Member at Large
Edythe lives with her family in Florida.  She and her husband have three beautiful children.  Her oldest daughter Naomi was diagnosed with PKS shortly after birth.  She also has two active boys who love to help their sister. Edythe was trained at the University  of Florida in the field of Pediatrics and currently balances her professional life with raising her children. She hopes to increase public awareness and equip families with medical knowledge to care for their children. 
 

 

David Gold, Member at Large
Dave lives in Minneapolis, MN with his wife Emily and four children. Dave's oldest daughter Lizzie was diagnosed with Pallister-Killian Syndrome at four days old. Since those early days, PKS Kids has been an invaluable resource for learning more about PKS and to connect with other families. Dave and his wife Emily have dedicated themselves to giving Lizzie the best quality of life possible and to working in the schools, the community and with various non-profits to make sure Lizzie and kids like her have access to the support and care that they need. Dave has previously worked with other non-profits such as St. Mary's Episcopal Church and the Carleton College Alumni Fund. When not spending time with family, Dave works for a cyber security startup called ProtectWise as VP of Product Management. He has a BA in Political Science/International Relations from Carleton College and an MBA from the Carlson School of Management (University of Minnesota). In his rare moments of free time he enjoys playing golf, ultimate frisbee and watching sports. 


   

Anthony Ellison, Member at Large
I, Anthony Ellison, am humbled and deeply honored to be selected as a member of the PKS Kids board. It is a blessing to be able to assist in helping our families spread awareness about this rare syndrome.
I am the proud and devoted father of A'Miracle Reign Ellison who was diagnosed in 2016 with PKS before her miracle birth. A'Miracle is now 15 months old and my wife Dalecia and I have shared these 15 months living "one day at a time".
I am willing to spend the rest of my life raising awareness of PKS. God does not make mistakes and I believe He chose the right families to raise our beautiful babies.

 
Conference Countdown
PKS Kids Face2 Face coming July 7-10, 2016. Hilton Indian Lakes Resort, Bloomingdale, IL.
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