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Board of Directors
PKS Kids was started by a small group of parents in 2006. Their purpose was to promote Pallister-Killian Syndrome and raise awareness through this non-profit organization.
Mike Zane   Mike Zane, Chairperson
Michael lives is East Islip, New York with his wife Nicole, also actively involved in PKS KidsTM. They have 3 beautiful children - Jake, who was diagnosed with PKS at 6 months old and twins Kayla and Brandon. Michael has been involved in the media business for over 20 years and currently oversees a department responsible for online marketing and customer experience for Publishers Clearing House, where he is Director of Online Marketing. He graduated from the University of Maryland at College Park with a degree in business management. Jake has his own website where all are welcome at www.jakezane13.com

Christine Strahm  

Christine Strahm, Treasurer/Financial Chair

I am a mother of 4 great kids, ages 19 (diagnosed with Asperger’s/ASD),  17,  7 and 4 (Airyn with PKS). I have worked full time at a Buick auto dealership for the past 9 years.  I live in Green Bay,  WI and love it here other than the long winters.  I have learned so much about PKS since Airyn’s diagnosis and it has motivated me to do more in regards to awareness and educating Airyn’s many doctors.  I have been lucky enough to have great physicians from the UW-Madison hospitals that Dr. Pallister has referred to in his past research.


Gretchen Peters   Gretchen Peters, Secretary & Education/Promotions Chair
Gretchen’s youngest child, Simon, was born in 2004 with Pallister-Killian Syndrome. Not having informational resources to help her deal with the diagnosis, Gretchen was determined to help others navigate through the world of PKS. To update friends and family, she created a website for her son and she's thrilled to know that it has been the first point of information for several families. Not wanting to stop there, she hopes that PKS Kids will help to make information about Pallister-Killian widely available for those who are still searching. Gretchen lives in Marshall, MI with her husband Jim and children, Alex, Emily, Maddy, Natalie, and Simon. She may be reached at gpeters@pkskids.net. You may visit Simon's website at http://www.simonpeters.webs.com/. Gretchen also serves as the Education & Promotions Chair.

Kim Hudson   Kim Hudson, Medical Advisory Committee
Kim lives in Pittsburgh with her husband and their 4 boys. Their oldest son Andrew was born in 2001 with PKS. She has been a nurse for 13 years and works part-time as a Field nurse supervisor for an agency that cares for children and adults with disabilities. Whenever possible, she enjoys traveling with her family and getting together with friends. Her hope for this organization is to promote awareness, facilitate research and ultimately improve the quality of life for the children touched by PKS.

Annie  

Annie Kelley, Member at Large

Annie lives in Canton, Michigan with her husband Tim and 3 children, Avery, Patrick and Jameson.  When Patrick was born in 2010 and diagnosed with PKS, they were given the pks kids website for guidance.  It helped her understand the importance of parent advocacy and made her determined to spread awareness of this syndrome.  Annie is currently a full time mom, but was previously an elementary school teacher.  She is also working on finishing her Masters Degree in Special Education, as well as volunteering and advocacy at the University of Michigan.  You can follow the family's journey at:  www.bubbypks.blogspot.com


Nicole Schmidt   Nicole Schmidt, Member at Large
I am a mom to 3 beautiful children, LIndsey, Hannah and Andrew, as well as a wife to Paul Schmidt for 17 years! We live in Becker, MN. I have a nursing background and worked at a local hospital for 9 years in the ER, Post-Partum/Nursery and Med/Surg units and most recently worked in the Wound Care Center the last 2 years of my job. I am now at home to help manage cares for my son Andrew, who is affected with PKS and Beckwith-Wiedemann Syndrome. I enjoy singing, music, cooking, entertaining, downhill skiing, water skiing, swimming, aerobics (most days:)), time spent with my family and friends. I have also found a lot of healing in advocating for my son and children with like needs.
 

  Juliet

Juliet Dawkins, Fundraising Chair

Juliet Dawkins grew up in Ohio and moved to Colorado after graduating from DePauw
University in Indiana.  Juliet earned her Bachelor of Arts degree in psychology and and a  
minor in education and planned to work with kids after college.  Although her first years
out of college were in the travel and sales industry, she always enjoyed volunteering
with children and often times, disabled children.  Little did she know that one day she
would have her own special child, with special needs.  Juliet and her husband Jason
live in Denver with their two daughters, Lucia and Scout.  Juliet enjoys planning events
and raising awareness for all the children affected by PKS. 


   

Debi Kabisch, Member at Large

 
Conference Countdown
PKS Kids Face2 Face coming July 7-10, 2016. Hilton Indian Lakes Resort, Bloomingdale, IL.
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